Tarlov cysts are fluid-filled sacs that are typically found in the sacral spine (at the bottom of the spine). Tarlov cysts (also known as perineural cysts or meningeal cysts) form in or on the sacral nerve roots that grow out of the sacral spinal cord (i.e. S1, S2, S3, S4 and or S5). They are usually an incidental finding on an MRI and, more often than not, are completely harmless – however, in certain cases, if fluid within the cysts builds up and starts to compress a nerve root, it can cause low back pain, pelvic pain, foot pain, bowel/bladder changes, sexual dysfunction, and/or headaches.
Treating Tarlov Cysts is a not straight forward process – removing them is an incredibly invasive surgery that can make matters much worse. Fortunately, our providers are experts in treating all types of pelvic pain, and can offer a variety of treatments, many of which are not available anywhere else in the country.
Trauma or impact can cause Tarlov Cysts to get bigger by causing more spinal fluid to build up within them. As a result, the chances of the cysts causing compression to a nearby nerve increases.
Tarlov cysts were first discovered in 1938, however there is still relatively little that is actually known about them. They are fluid-filled nerve root cysts usually found at the base of the spine (aka the sacrum). They are typically seen along the posterior nerve roots of the sacral spinal cord. Cysts can sometimes have small valves on them that allow the fluid within them to empty out thus preventing them from increasing in size. The most important feature that sets apart Tarlov cysts from other lesions or pathologies is the presence of spinal nerve root fibers WITHIN the cyst wall or in the cyst cavity, itself.
Due to their location in the sacral spine and close proximity to other structures in the pelvic region, they can sometimes be misdiagnosed as gynecologic/urologic issues or lumbar disc herniation. Diagnosing pain from a Tarlov cyst is not a straightforward process, especially in patients who have other conditions in the same area of the body.
Tarlov cysts are usually harmless and most people who have them have no idea they are even there. No one knows exactly why or how they happen but they are usually found after a fall or trauma to the tailbone area of the spine causes previously undiagnosed cysts to flare up and cause pain.
It is estimated that between 5-9% of the general population have small, undiagnosed Tarlov Cysts – large symptomatic cysts are quite rare.
33-39% of woman will experience pelvic pain at least one point in their lives with as many as 20% of these cases progressing to Chronic Pelvic Pain (CPP). It is also estimated that up to 5% of the general population of women will experience CPP – that estimate rises to 20% in those with a previous diagnosis of pelvic inflammatory disease (PID).  Of the various conditions that cause pelvic pain, levator ani sydrome is one of the least common, overall. Despite its overall rarity, it can affect as many as 7.4% of woman, and 5.4% of men. While it is not entirely understood as to why women seems to be more susceptible to it, the obvious differences in the content of the pelvis between men and women is thought to play a role. In men, the organ and the pelvic floor are never meant to move. Women, the other hand, have evolved to possess a dynamic pelvic region and pelvic floor to accommodate a baby during pregnancy and musculature that can shift during the process of child birth. It is believed that the relative lack of rigidity may play a role such that the area may be more predisposed to movement and change which leads to spasming and dysfunction.
CPP is a complex, debilitating disorder defined as “a non-malignant pain perceived in the pelvis in either men or women.” In the case of documented nocioceptive pain that becomes chronic, the pain must have been continuous for at least 6 months, although this timeline has been debated. If “non-acute” mechanisms of pain and/or central sensitization are noted, then the pain may be regarded as “chronic,” irrespective of the time period. More often than not, one will note the presence of behavioral, sexual and emotional sequelae.
Pelvic Pain is a broad diagnosis of exclusion that likely encompasses other pathologic states, and even more likely encompasses an evolution of those states to a neuropathic state. Like all neuropathic pain, Pelvic Pain is a result of an insult or injury to the somatosensory nervous system (peripheral or central), whereby an insult to the nervous tissue leads a pain syndrome often characterized by disproportionate pain. Depending on the nerve involved or the nerve injury, the distribution of the pain will be different.
Pelvic pain may start in one area, but as time goes on, the sympathetic nervous system will get involved and cause more and more nerves to become involved which will cause the pain to spread and become more intense.
Symptoms of a body area affected by Pelvic Pain include:
Burning and/or lancinating pain in the pelvis, anus, and/or genitals
Pain with sitting
Pain with urinating and/or defecating
Pain with intercourse or painful ejaculation
Paresthesias (pins & needles sensation) and numbness
The short answer is…maybe. This was first proposed by a doctor in 2003. Dr. Hunter subscribes to this notion as he has published as well as lecturing extensively on this notion.  In the case of CRPS, the changes are visible (i.e. skin color changes, loss of hair, brittle toe nails, changes in blood flow, etc). In the case of CPP, the changes are internal and cannot be seen – instead of a bright red leg, people with pelvic pain might be told they have bulging blood vessels on an MRI but also told it is not pelvic congestion syndrome. In CRPS, simple things like light touch or clothes cause extreme pain. In CPP, things like urinating or sexual intercourse cause pain. The similarities are there, it is just not as accepted.
As mentioned above, the exact cause of Pelvic Pain is unknown. A number of inciting pathologies that render one susceptible to the signs and symptoms characteristic of Pelvic Pain, though, have been implicated. Among them are disease states, and causes specific to gender and organs.
In most cases, those suffering from Pelvic Pain or Chronic Pelvic Pain are already under the care of either a OB/GYN or Urologist and only consult a Pain Management Physician afterward. Once they do it is imperative for the physician to obtain a thorough history and conduct a comprehensive physical (with a focuses abdominal examination) as many of the causes of Pelvic Pain can be reversible. Pelvic examination, lab testing, and ultrasounds or CT scans of the abdomen and pelvis are often utilized to rule out other more conventional causes.
Both diagnosis and management of patients with Pelvic Pain require good integration and knowledge of all pelvic organ systems and other systems including musculoskeletal, neurologic, and psychiatric. A significant number of patients with Pelvic Pain may have a variety of associated problems including bladder or bowel dysfunction, sexual dysfunction, and other systemic or constitutional symptoms. Other associated problems, such as depression, anxiety, and drug addiction, may also coexist.
Find a REAL Pelvic Pain Expert
Pelvic pain treatment requires a specialist with experience and precision. At the Ainsworth Institute of Pain Management, we offer some of the most modern and cutting edge treatments for chronic pelvic pain. Our very own Dr. Hunter is widely considered one of the WORLD’S experts in pelvic pain with a number of publications on the topic to his credit.
When looking for a specialist to treat pelvic pain, the doctor should be boarded in either pain management, gynecology or urology – make sure to ask what they are boarded in and what formal training they have in the field. Don’t accept any substitutes. There are a number of unscrupulous physicians out there who market themselves a “pelvic pain specialists” who have no training in pain, no training in women’s health, no training in pelvic pain…basically someone who has no business treating patients with pelvic pain. If the person says they worked with someone or worked in a women’s health department and that’s the only experience they have, WALK AWAY
When looking for a physical therapist that specializes in pelvic floor therapy, find out how many active patients the therapists has, what exercises he/she offers and what doctor’s he/she works with in the community. There are very few out there with the qualifications and experience so make sure to find the right one.
Bogus Treatments for Pelvic Pain
Pelvic pain is one of THE most difficult pain syndromes to treat – anyone who says any different is trying to sell something…and therein lies the problem. There are a number of physicians marketing themselves as “Pelvic Pain Specialists” who have no business treating anyone with pelvic pain but unfortunately patients don’t know the difference until it is too late. They know that patients with pelvic pain are so desperate that they will try anything new or different for the small hope of finding any shred of pain relief. As a result they will use smoke and mirrors to pass off therapies as “new” or “different,” knowing full well that a patient with pelvic pain will come across these treatments, see they are things they haven’t tried yet and will sign up to be a guinea pig. Worse yet, they will charge cash.
Evidence-Based Treatment Options
Cannibus (aka Medical Marijuana) – Cannibus has shown to be effective in a variety of different types of chronic pain conditions. Medical marijuana is a personalized treatment whereby the pharmacist will interview you to discuss your pain and your medical history to create the proper blend and ratio to suit you, individually. It is a safe medical option with a low side effect profile.
IV Infusion Therapy – A simple procedure commonly performed in the office. Your doctor will administer a small IV catheter, and then infuse special medications intravenously in an attempt to halt the pain process.
Superior Hypogastric Plexus Block – This procedure is used as both a diagnostic and therapeutic tool. Under radiographic guidance, a thin needle is inserted through the skin and advanced toward the L5 vertebra – the location of the superior hypogastric plaexus. A blockade of the superior hypogastric plexus has been reported to decrease pelvic pain by 70%.
Ganglion of Impar Block – Like the Superior Hypogastric Block, this procedure can also be used for both diagnostic and therapeutic purposes. This procedure is performed under radiographic guidance with the target being a small area directly in front of the coccyx (tailbone). This injection is extremely effective in treating pain originating from the cervix, colon, bladder, rectum and endometrium. Studies have reported 70-100% pain relief from this procedure.
Sympathetic “Reset” – When the sympathetic nervous system becomes involved in your pain, it becomes exponentially harder to treat and may explain why your pain has stopped responding to conventional treatment options. Resetting or rebooting the sympathetic nervous system is an old fashioned technique used for treating Complex Regional Pain Syndrome (CRPS) in the arms and legs whereby a small amount of local anesthetic is injected onto a specific part of the sympathetic nervous system to temporarily turn it off and give it the opportunity to recalibrate itself at a normal level. Applying this age old concept to pelvic pain by adding growth factors from Amniotic Tissue, we are able to trick your Sympathetic Nervous System into slowing back down to a normal level.
Inferior Hypogastric Block – Similar to the Superior Hypogastric Plexus Block and the Impar blocks, this can be diagnostic and therapeutic. This procedure is typically considered when more lower and external pelvic pain and if the treating the impar is ineffective
Hypogastric Nerve Block – This is an unconventional block that not many are trained to perform due to the skill involved to reach this nerve selectively, while leaving other structures unharmed. The hypogastric nerve connects the superior and inferior hypogastric plexuses which make it an excellent target for treating neuropathic pain.
Peripheral Nerve Block – A peripheral nerve block can be extremely effective way of treating many types pain, including CPP. There are an abundance of nerves providing innervation to the pelvic region and its organs – any of which can be targeted and blocked with a small amount of local anesthetic to provide dramatic pain relief. Many of these injections can be performed under ultrasound guidance.
- Pudendal Nerve Block
- Genitofemoral Nerve Block
- Ilioinguinal Nerve Block
- Iliohypogastric Nerve Block
- Lateral Femoral Cutaneous Nerve Block
- Obterator Nerve Block
- Subcostal Nerve Block
Neurolysis & Ablation – In many cases an injection will provide relief, but this is only a temporary solution. In cases such as these, neurolysis or neuroablation can be utilized to provide longer relief. There are several different techniques available:
- Radiofrequency Ablation (RFA) – Radio waves are applied to a nerve, subsequently stunning it and preventing from transmitting pain.
- Chemodenervation – Small amounts of either alcohol or phenol are injected, thus blocking the nerve’s ability to transmit a signal.
S2 Dorsal Root Ganglion Block – The hard part of treating pelvic pain is finding which nerve or nerves is/are either the cause of the pain or is/are responsible for transmitting the pain signals. The S2 level is unique in that it captures all but 1 of the pelvic nerves thus making it an excellent target for hard to treat pelvic pain.
Epidural Steroid Injection – These injections are more commonly used for neck and low back pain, however they can also be used to provide local pain relief to a specific dermatome – in the case of pelvic pain, a dermatome overlying pain in the pelvic region.
Spinal Cord Stimulation – This is a regularly performed procedure utilizing technology similar to that of cardiac pacemakers. This method involves placing small electrodes into the epidural space near the spinal cord. These electrodes produce a small electrical current over the spinal cord that your brain will interpret as a gentle massage or feeling of “champagne bubbles.” In the case of pelvic pain, the leads are placed over the sacral nerve roots, or in the thoracic region.[15-16]
DRG Stimulation – A variant of Spinal Cord Stimulation but way more effective. This procedure involves placing leads a fraction of the size of traditional stimulator leads directly over the nerve levels that are transmitting the pain. Our very own doctor discovered the use of DRG Stimulation for the use of pelvic pain by using unique lead combinations that isolate discomfort in the pelvic region.
Intrathecal Pumps – This is a method whereby a small catheter is placed in the subarachnoid space and minuscule amounts of medication are delivered directly to the spinal cord and the rest of the CNS. This enables your physician to provide the same medications but at a fraction of the dose due to the proximity to the spinal cord. More importantly, our doctors have been putting a revolutionary drug inside the pumps called ziconotide and are reported amazing successes!
Medication Management & Pharmacologic Therapy – There are a wide-variety of medications found to be effective in treating CPP – these include non-steroidal anti-inflammatories (i.e. ibuprofen or naproxen), membrane stabilizers (Lyrica or gabapentin), antidepressants (Cymbalta or amitriptyline), anticonvulsants (Keppra) and opioids (oxycodone or hydrocodone). Opioids should be the last option.
Physical Therapy & Biofeedback – Exercises focusing on pelvic floor muscle relaxation, as well as ultrasounds and stretching have been shown to help relieve pelvic pain.
The Ainsworth Institute is Here to Help
Our doctors at the Ainsworth Institute of Pain Management are experiences in managing and treating pelvic pain. Dramatic improvements are possible with the right treatment. The sooner treatment is started, the better the chances of success. Call and schedule an appointment now with one of our board-certified pain management experts.
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